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The Long Covid Collective

Public·143 members

Hi, y'all, I hope everyone is having a good Friday or at least counting down to the weekend!

I wanted to share an experience I had earlier this week with you all because I truly feel that this is the only community that will understand my frustration.

Earlier this week, I went to yet another doctor's appointment to get the results of an extensive immune system test. My providers were concerned that my immune system wasn't doing its job, and that was the reason why my bout of Covid was so serious, especially since I'm "so young." After the Pneumovax shot, my immune system numbers went up, which is good, ruling out immune deficiencies and autoimmune disorders. The only conclusion was Long Covid. I was so frustrated because I just wanted an answer with a solution. Right now, there are no LC clinics in my area, and I feel like I am back to square 1.

I do appreciate my doctor, as he, too, was upset that LC was the only conclusion, but because of that frustrating appointment, this week has been a bit of a bummer. I am frustrated and, in a way, mourning my pre-Covid life. While I am fortunate to have a support system, I am constantly being told, "Don't worry about it," or "At least it isn't ___." While those words force me to think positively, they don't encompass how I really feel.

How do you go about cheering yourself up after frustrating Dr.'s appointments?

It's okay to be frustrated... because it's frustrating!! I don't have any skills to perk myself up, but I generally "allow" myself to rest without feeling guilty about it, which seems like a small thing, but isn't. You are not alone in this. It can be lonely, but you are not alone.

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